Pink-tober has bloomed in rosey reminders for women to be aware and take care. Walks, T-shirts, pretzels, and football fields parade the pink advertising the call to donate to awareness and support campaigns. Oddly enough, the breast cancer that robs us of our mothers, daughters, sisters, and friends is not given the attention or funding needed to cure metastatic breast cancer-MBC-the breast cancer that kills. More oddly, only one day, October 13th, is designated as MBC day within the National Breast Cancer Awareness month. Disgracefully, MBC funding for the cure is paltry compared to the billions of dollars raised within big organizations with huge overhead, donning the pink ribbon.
Surrendering Pink is my annual rant since being diagnosed with MBC in 2012. I am lucky to be alive and well. It is only because my treatments are made possible by the science and research dedicated to finding the cure. Also, and so importantly, I am indebted to generations of MBC sisters before me who endured clinical trials with courage and resolve. I stand on their shoulders, hopeful that in my lifetime this disease will be erased from our life stories.
Ok, I’ll say it-“I hate pink!” This is a harsh statement for me to admit out loud, on paper, since pink had forever been my favorite color.
The pink passion started early. My mother always dressed my three younger sisters and me in the same style, dresses, and coats. We were differentiated by color. Mary had the carefree blues, Diana in gorgeous greens (the only light-eyed and golden hair of the four who could carry all shades of green), and I in happy pinks. My faded clothes were handed down to my youngest sister, Barbara, whose color was dubbed “peach.” We were quickly identified by our shaded peddle-pushers and peter-pan collared shirts.
Pink suited me. Pinks softened my dark eyes and evened my ruddy skin tone. While most girls outgrew their pink tendencies, I continued to wear pink-from fluffy headbands to sparkly pink pumps. I preferred pink roses. Conveniently, pink tourmaline marked my birthstone. Soft-spoken pink was not loud, like orange or fierce like red. Happy pink fit my practical and shy nature best. It was always mine.
Then breast cancer hit. Surgery, chemo, and radiation therapies knocked out Stage 1 cancer and forever placed me in the sisterhood of survivors. This was not exactly a crowd I wanted to be a part of, but since 2007, I have been proud to have this strong army on my side of the battle.
Pink, breast cancer’s mascot, flooded my already pink themed drawers and closet. During that year, pink crept beyond the clothing and took center stage in jewelry, accessories, and housewares. I toted a canvas bag with the pink ribbon embroidered on the side and collected pink flip-flop promotional pins to give away with the message to stay vigilant. I wore pink breast cancer awareness T-shirts and scarves to prove my participation in walks.
My pink had a new role. It was proof of my membership to the mission. I was proud to be a pink survivor and so grateful to have my health and a long life ahead.
The bottom fell out in 2012. The menace came back. Cancer had metastasized in my bones. Some little cell(s) somehow survived the onslaught five years before and meandered its way to my vertebrae. Unbelievably, some 25-30% of earlier staged breast cancer patients do develop Stage IV metastasized cancers!
No one dies of cancer to the breast, but over 40 thousand women will die of metastatic breast cancer in 2019. There is no cure. Although the value of the fundraising campaigns is important for awareness and support, I am particular over which organizations I contribute to. Finding the cure for MBC should be the mission. The METAvivor foundation is committed to finding that cure.
I am lucky, though. The cancer was caught early before any real damage occurred. After surgeries and radiation therapy, the ongoing treatment protocols have been minimally intrusive and invasive. There is no expiration date.I continue to work and take care of my family and home. Play fits in more frequently, and there is a dent in a deep bucket list. I look healthy and can believably state, “I’m fine.”
Despite all this “good attitude,” I do feel betrayed by my own body and really angry! I try not to rant over the unfairness or sob through boxes of tissues (OK, I’ll admit to having regular private pity parties). I won’t let cancer rule my life. I am at war, and war is not pretty. Pink has no place in war.
The purging of pink had taken place. I adopted my sisters’ blues and greens. Strong reds and bold purples seeped into my closet. The pink ribbon mugs live in the corner of the kitchen cabinet. The pretty pink shoes and handy totes have new homes. I hung up the pink survivor role for a stealth warrior persona. My practical and shy nature reluctantly surrendered my beloved pinks to take on a bold stance for life.
*If you contribute to breast cancer campaigns, please consider METAvivor.
METAvivor funds the necessary research to wipe this hideous disease out of our life stories. 100% of raised monies go directly into the research that will cure MBC.
Antoinette Truglio Martin is the author of Hug Everyone You Know: A Year of Community, Courage, and Cancer. The memoir is a wimpy patient’s journey through her first year of breast cancer treatment.
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Wow this is a strong post Antoinette. You are a strong woman, thank you for speaking up.
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When I saw where you were going with this essay Antoinette, I was tempted to quietly just move on. The experience my mom when through was plenty of pain for me but I was thankful for the medical knowledge (even the state it was in in the early 1960s) that saved her life and gave her another 38 years. She was thrilled to be alive, to be able to raise her three children and get to know her 5 grandchildren. But, I so support you making this journey public and raising awareness, that plowed on, knowing that you would only leave your readers inspired by your passion.
Thanks again for carrying this torch my friend.
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Thanks, Gary. I generally keep the plight quiet. I refuse to have this disease define who I am. However, I am compelled to say something while the cloud of pink does not address the problem with this cancer.
Thank you for this post and for your book. It has helped me not to feel guilty about secretly hating the “pink” month of October and resenting those that hail their strength has cured them of bc. At present I am NED, a term I’m comfortable with, but I’m realistic and know this designation can turn in an instant. I am strong! I am positive! I want to live life to the fullest and be with my family for as long as I can. That ax you mention though is always hovering. You are spot on in promoting mbc as the most important research focus to battle breast cancer. Thank you!
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Thank you for your heartfelt comments. The best we can do is take everyday as a gift. STay well and positive. Share your story.